Reagan Norris was born May 2, 2019, and diagnosed with a cleft lip and a critical Congenital Heart Defect known as right-dominant Unbalanced Atrioventricular Canal defect.
About 1 in 100 children are born with CHDs but Reagan’s defect was highly critical so doctors jumped into treatment and rushed her into open heart surgery at seven days old.
Reagan was in and out of hospitals since birth, undergoing many procedures and two additional open-heart surgeries in October 2019, consequently ending with complications that led to her death five weeks later.